Hope. Trust. Decisions.

Hope. Trust. Decisions. (orig. published 3.10.11)


I like to pretend that Colson's next surgery is so far out yet that I don't have to think about it much. Which is fine. Except, it's not. It's not far away, it's right around the corner. I have to think about it. Pre-op appointment is next Monday already. It's time to focus.

Colson will be having Bilateral Proximal Femoral Osteotomy surgery on April 13th at the Philadelphia Shriners Hospital (and yes, my 3 year old CAN say "femoral osteotomy surgery for my arthrogryposis". He can also tell me that it hurts. Apparently, it hurts a lot). Truthfully, I want nothing to do with it. I even wanted to reschedule simply because it's on the 13th. That's not exactly a lucky number. But enough excuses. Let's get it done and over with. It terrifies me and I'm not the one being operated on. I found a great blog about an adorable little girl who had this surgery done in November 2010. You can read about it here: Laelia Sky. This little girl and her parents are such an inspiration to us while we are facing this same surgery.


This surgery will literally change Colson's life. He will have to re-learn how to get around, he will have to learn how to play differently and sit differently. He's had surgery before, however this one is the most intensive. He also has a terrible reaction to morphine that is completly heartbreaking and extremely trying for 24 hours.  I just hope we're making the right decision. There's no way to know really. We have to have trust and faith in his medical team, in our research and in the knowledge that we are making a well educated decision for our son. And we do. We definitely do. And most of all, we have to have hope. For it is the hope for tomorrow's that will bring peace to your mind, peace to your heart and peace to your soul. And a peaceful mind will help us ALL get through this.


Much love.

-J-


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